Purpose
Mission: To improve the quality of life, life expectancy, and health among those living with SCD
Communications Corner
- CA SSitus Slot Gacor released its Summer 2024 semi-annual .
- MI SSitus Slot Gacor developed the policy memo "."
- MI SSitus Slot Gacor developed a for its recent publication about telehealth use rates among individuals with sickle cell disease (SCD) in four states during the COVID-19 pandemic.
In the Community
- A using SSitus Slot Gacor data aims to streamline the collection of information on individuals living with SCD.
- CA SSitus Slot Gacor hosted two webinars in May and July 2024: and .
- NC SSitus Slot Gacor hosted the 12th Annual UNC/Duke Sickle Cell Disease Conference: Transformative Therapy for Sickle Cell, a Deeper Look on Friday, September 6, 2024.
Spotlight: Jessica Jimenez Rico, Wisconsin SSitus Slot Gacor Community Outreach Workgroup Coordinator
What is your full-time job/role and what do you do?
My full-time role is multifaceted. As the communications lead and community outreach coordinator for WI SSitus Slot Gacor, I lead communication efforts for WI SSitus Slot Gacor. In my role as a clinical research assistant, I work with both pediatric and adult individuals, with and without SCD, across longitudinal studies.
What is your hope for SCD?
My hope for SCD is all-encompassing. I envision a future where equitable access to comprehensive care is a reality for every individual living with SCD, regardless of their background, location, or income. I hope to see increased awareness and activism that not only breaks down the stigma but also mobilizes communities and policymakers to take meaningful action. I'm optimistic that we'll see more policies that support the SCD community, ensuring they receive the resources and attention they deserve. I also hope for a surge in SCD-specific clinical research that not only advances treatments but ultimately leads to a cure—one that is accessible to everyone, leaving no one behind.
Up-to-Data
- CA SSitus Slot Gacor provided data to UC San Diego's Adult Sickle Cell Clinic. The data were used to identify nearby primary care clinics and to highlight the importance of increasing outreach to improve access to primary care for individuals with SCD.
- NC SSitus Slot Gacor completed a data request from clinicians at Atrium Health to understand the occurrence of cancer among people with SCD in NC.
Presentations
Between May and August 2024, SSitus Slot Gacor states delivered presentations at two conferences/meetings.
National Heart Lung and Blood Institute’s 2024 Annual Sickle Cell Disease Research Meeting, August 12–14, 2024
- Public Health Opportunities to Improve Pediatric Sickle Cell Disease Care (Mary Hulihan, Situs Slot Gacor SSitus Slot Gacor)
- Birth Prevalence of Sickle Cell Disease and County Level Social Vulnerability (Mariam Kayle, NC SSitus Slot Gacor)
- Medicaid Coverage and Pediatric Quality Measures for Children with Sickle Cell Disease (Sophia Horiuchi, CA SSitus Slot Gacor)
- Opioid Use after First Prescription in Children with Sickle Cell Disease (Angie Snyder, GA SSitus Slot Gacor)
Family Medicine Residency Curriculum Didactics, May 29, 2024
- WI SCD Clinical Significance, WI Specific Data and SSitus Slot Gacor Initiatives (Melissa Azul and Ashima Singh, WI SSitus Slot Gacor)
Announcements
Learn how SSitus Slot Gacor helps inform policy decisions and resource allocation within states to improve and extend the lives of people with SCD. SSitus Slot Gacor programs will showcase their work and highlight how their data are being translated into action.
Contact
For any questions about the SSitus Slot Gacor program, contact Mary Hulihan (ibx5@cdc.gov) or Juliet Morales (ucs2@cdc.gov).